Recipient Stories

Recipient Stories

The Founder's Heart

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Stories from On Angels’ Wings Recipients

Kamiyah : Maybe One Day

Kamiyah : Maybe One Day

By Elisha HillMommy to KamiyahTurner Syndrome, Congenital Heart Defect2023Kamiyah was my 6th pregnancy and, because of my age, we decided to do the NIPT testing in the first trimester of my pregnancy. We wanted to do a gender reveal, but unfortunately that wasn't...

Jacob : Missed Every Day

Jacob : Missed Every Day

By Taylor RobersonMommy to JacobTrisomy 10q2022-2023When we first found out we were pregnant we were so excited. Then we went in for our anatomy scan and our world changed. Baby boy was measuring small and his heart did not look normal. We got an amniocentesis that...

Wyatt : Watching Every Breath

Wyatt : Watching Every Breath

By Stephanie Weidknecht Mommy to Wyatt Laryngomalacia Tracheamalacia Born in February 2022 Wyatt was born a healthy full-term baby, or so we thought. Immediately after birth, he sounded like a dog toy, and I thought “that’s a cute quirk.” Occasionally I would worry...

Lincoln : Just Breathe

Lincoln : Just Breathe

By Brooke RiddlespergerMommy to LincolnChronic Lung Disease / Bronchopulmonary DysplasiaBorn in November 2019 I had a super rough pregnancy, something was always wrong. I was in and out of triage. This night was different because I KNEW something was really bad,...

Abigail : Everything Will Be Alright

Abigail : Everything Will Be Alright

May is Anencephaly Awareness MonthMarcy JuddMommy to AbigailAnencephalyOctober 2022We started trying to get pregnant with our second child in January 2021. We knew we’d probably need medical help as it had taken two rounds of fertility treatments to get pregnant the...

Caroline : Life in Slow Motion

Caroline : Life in Slow Motion

May is Anencephaly Awareness MonthBy Mackenzie SlackMommy to CarolineAnencephalyFebruary 2023Our journey began with the happiest August ever. The three of us (my husband, son, and I) were overjoyed to find out we were expecting. Our son was 3 when we found out we were...

Benjamin : 311 Days

Benjamin : 311 Days

April is Donate Life MonthBy Jackie HayMommy to BenjaminBorn April 2022Congenital Heart Defect - Hypoplastic Left Heart SyndromeTransplant SurvivorIn September 2021, we were surprised to learn that our family of three would soon be turning into a family of give! At...

Henry : Always Adapting

Henry : Always Adapting

April is Congenital Diaphragmatic Hernia Awareness MonthBy Christine HunterMommy to HenryBorn August 2018Congenital Diaphragmatic Hernia5q14.3-5q15 Deletion, Bosch Boonstra Schaaf Optic Atrophy Syndrome, MEF2C Haploinsufficiency Syndrome, Cortical Visual Impairment,...

Samuel : Such a Joy

Samuel : Such a Joy

April is Congenital Diaphragmatic Hernia Awareness MonthBy Elle QuinnMommy to SamuelBorn December 2022Congenital Diaphragmatic HerniaI found out about Samuel's pregnancy after I had experienced three losses before him. I had an older son and we had been trying to have...

Hazel : Blindsided by a Second Diagnosis

Hazel : Blindsided by a Second Diagnosis

March is Brain Abnormalities Awareness MonthBy Rebecca NorrisMommy to HazelBorn February 2016Pontocerebellar HypoplasiaHazel was born prematurely. My water broke at 24 weeks and they kept her in until 27 weeks and 4 days. This is when our journey with On Angels’ Wings...

Louie : Love Keeps Him Here

Louie : Love Keeps Him Here

March is Brain Abnormalities Awareness MonthBy Maria BottinoMommy to LouieBorn August 2021Hypoxic Ischemic Encephalopathy (HIE)I’ve been told since I was 16 years old that I would never get pregnant due to a health concern of my own – endometriosis. In January 2021...

Rhylyn : Unbreakable Bond

Rhylyn : Unbreakable Bond

March is Brain Abnormalities Awareness MonthBy Braedn ArnallDaddy to RhylynBorn February 2019Hypoxic ischemic encephalopathy (HIE)Rhylyn had a traumatic birth. Thankfully, she is a very strong girl and is doing her best to overcome any obstacles. As hard as it may be,...

Tate : It is Well With My Soul

Tate : It is Well With My Soul

March is Brain Abnomalities Awareness MonthBy Heather CrowleyMommy to TateBorn June 2019Ohtahara SyndromeRecently married with a three-year-old stepson, my husband and I decided to try to get pregnant fairly quickly so that the kids could be close in age. We were...

Izzy : True Vision of a Warrior

Izzy : True Vision of a Warrior

March is Brain Abnormalities Awareness MonthBy Carrie DyalMommy to Izadora “Izzy”Born August 2019Intractable epilepsy without status epilepticus and global delaysMy husband and I had had two miscarriages before Izzy was born; a twin pregnancy lost at 8.5 weeks, and a...

Amada : Never Forgotten

Amada : Never Forgotten

February is Rare Disease Awareness MonthBy Scott McDonaldDaddy to AmadaPentalogy of CantrellBorn November 2022We always wanted to have children, just not sure of the timing. We tried for some time before it happened, so when we got pregnant, we were so happy. We...

Joey : Everything in Stride

Joey : Everything in Stride

February is Rare Disease Awareness MonthBy Penny RodenhouseMommy to Joseph “Joey”PTPRT Gene Mutation, Moebius Syndrome, Tracheomalacia, Congenital Myopathy, Epilepsy, Hypotonia, Chronic respiratory failureBorn May 2022My husband and I tried to have a baby for 6 years...

Ledger : What He Was Supposed to Be

Ledger : What He Was Supposed to Be

February is Rare Disease Awareness MonthBy Abby FaumuinaMommy to LedgerLimb Body Wall ComplexApril 12, 2023After trying to get pregnant for over 3 years, we finally gave up and decided we were probably infertile. To our surprise, on August 27, 2023 we found out I was...

Ezra : Peace That Surpasses Understanding

Ezra : Peace That Surpasses Understanding

By Lisa EgglestonMommy to EzraMay 24 – May 25, 2019AcraniaWe decided we wanted to start our family fairly young to be younger parents. After a couple of months, we were soon pregnant with our first child in September 2018. We were excited and started making plans for...

Beckham : Terrified Hope

Beckham : Terrified Hope

By Angela FrankMommy to BeckhamOctober 26 – November 12, 2022Brain AVM, Heart FailureBeckham’s pregnancy was a really big surprise! A surprise we didn't know we wanted so bad until it happened. Nick and I had been together for 5 years and were raising Brooks, my child...

Ilah : Fight Together

Ilah : Fight Together

By Nicole WeberMommy to IlahBorn August 2023Pulmonary Atresia – Congenital Heart DefectWe went in for our 20-week anatomy scan for our second child and found we were having a girl. However, the ultrasound tech started to seem a little worried. Once the scan was done,...

Samuel : Cherish Every Moment

Samuel : Cherish Every Moment

By Darby HarveyMommy to SamuelBorn March 2023Trisomy 13My husband and I struggled with infertility. We were in the process of seeing multiple specialists for infertility treatment when we found out we were pregnant. At our 20-week anatomy scan they found our little...

How the Grief Recovery Method Helped an OAW Momma

How the Grief Recovery Method Helped an OAW Momma

I wrote this on my Facebook profile two years ago and it’s still one of the best things my husband and I have ever gone through together. I highly, highly recommend the Grief Recovery Method. Friends, if you have a loss of any kind that you need to walk through and...

Taezia : Praying for a Miracle

Taezia : Praying for a Miracle

September is Pediatric Cancer Awareness MonthTina CaudleMommy to TaeziaNeurofibromatosis type 1 (NF1)As a mom you know when something is wrong with your child. Taezia was born with a scary looking brown spot on the skin on her lower back. We asked her pediatrician...

Lana : Shining Smile

Lana : Shining Smile

September is Pediatric Cancer Awareness MonthBy Tonya MorrisMommy to LanaNeurofibromatosis type 1 (NF1)Lana’s journey started when she was born (August 2017). She scream-cried every day and almost all day long. She projectile vomited after every feeding and wasn’t...

Riley : From Fear to Cancer Free

Riley : From Fear to Cancer Free

September is Pediatric Cancer Awareness MonthBy Samantha LaBargeMommy to RileyInfant Acute Lymphocytic LeukemiaEverything started when Riley was about 4 or 5 months old – she had a bump on her head and what seemed like a cold with a fever that wouldn’t break with...

Elijah : Just Three Months

Elijah : Just Three Months

September is Pediatric Cancer Awareness MonthTyra JohnsMommy to ElijahMalignant Rhabdoid Tumor Predisposition SyndromeFebruary 23 – May 20, 2022I found out I was pregnant unexpectedly in June 2021, just 4 months after giving birth to Elijah’s older sister. Being only...

Gabriel : Our Little Warrior

Gabriel : Our Little Warrior

September is Pediatric Cancer Awareness MonthBy Janet LopezMommy to GabrielGrade 3 Anaplastic Astrocytoma of ThalamusApril 8, 2016 – February 4, 2023Gabriel was born the spring of 2016. He was a happy, healthy baby, and we were so happy to finally have him in our...

Willa : Amazingly Resilient

Willa : Amazingly Resilient

May is Lung Disease Awareness MonthWhitney WoodringMommy to WillaBorn November 2017Congenital Central Hypoventilation SyndromeWilla is our second child. Like most parents, we were excited to have a new baby, to give our other daughter a little sister to grow up with...

Shyla : Remembering Smiles

Shyla : Remembering Smiles

May is Lung Disease Awareness MonthBy Becky HuffmanMommy to ShylaBorn December 2014Bronchial Pulmonary Dysplasia, Cerebral Palsy Shyla came to us through foster care when she was 9 months old, in September of 2015. We did not know she was medically fragile at the...

Archer : Deep Breath

Archer : Deep Breath

June is Lung Disease Awareness MonthBy Allyson MattinglyMommy to ArcherBorn May 2021BPD (Bronchopulmonary dysplasia) - chronic lung diseaseOverall, my pregnancy with Archer was normal. At my 20-week anatomy scan they thought something was wrong with his heart. So,...

Cecelia : Here for a Moment

Cecelia : Here for a Moment

May is Anencephaly Awareness MonthBy Shyanne CeradskyMommy to Cecelia FayeAnencephalyJuly 19, 2022My baby lived 39 precious weeks inside my womb, and just moments outside in the world, and her life still mattered. We went to a third-party ultrasound place to get some...

Haleigh : Always Smiling

Haleigh : Always Smiling

April is Congenital Diaphragmatic Hernia Awareness MonthApril is Donate Life MonthBy Tara HahsMommy to HaleighCongenital Diaphragmatic Hernia and Bilateral Wilms TumorsHaleigh was diagnosed with Congenital Diaphragmatic Hernia while I was pregnant at my 18-week scan....

Chanse : Stable and Thriving

Chanse : Stable and Thriving

April is Congenital Diaphragmatic Hernia Awareness MonthBy Janell SchwarzMommy to Chanse SchwarzCongenital Diaphragmatic HerniaI found out I was pregnant at 13 weeks. I went in for a routine sonogram at 14 weeks with my OBGYN in Topeka, and I knew then I was having a...

Winnie : Sweet One

Winnie : Sweet One

March is Trisomy Awareness MonthBy Emily VinsonMommy to WinnieTrisomy 18Born September 1, 2021It all started when I had gotten my 10 week NIPT blood test done. It came back 96% positive for the rare genetic disorder, Trisomy18. When my doctor called, she explained...

Harper Mae : Second Heartbreaking Loss

Harper Mae : Second Heartbreaking Loss

February is Heart MonthBy Katelyn LeeMommy to Harper MaeCHD - Truncus ArteriosusAugust 21 – October 17, 2022 My husband and I found out we were pregnant with our son in January of 2021. We spent January to May loving every minute and getting ready to welcome our son...

Cole : A Sense of Normalcy

Cole : A Sense of Normalcy

February is Heart MonthBy Maggie ButtramMommy to ColeCongenital Heart DefectI remember every detail of what we thought would be our 19-week anatomy scan for our second child; it became a moment that is burned in my mind forever. My husband had to work, so I went...

Kendrick : Change of Mindset

Kendrick : Change of Mindset

By Breanna ScottMommy to KendrickSpina BifidaOur journey with Spina Bifida began at my anatomy scan while pregnant with our first child, Kendrick, in 2017. My OB noticed some abnormalities on my ultrasound and sent me to a local maternal fetal medicine doctor. While...

Zander : A Father’s Grief Fuels Purpose

Zander : A Father’s Grief Fuels Purpose

By Micah ClarkDaddy to Zander Born still on August 12, 2017My wife, Raelynn and I were super excited to welcome our son in the fall of 2017, and life was good until that summer. August 11th, a typical day, we went in for our baby's check-up. We got checked in and...

Martha : Time Cut Short

Martha : Time Cut Short

May is Anencephaly Awareness MonthBy Taleah JohnstonMommy to Martha Born still on May 24, 2022AnencephalyMy husband and I take a fishing trip for our anniversary each year. When our anniversary came in 2021, we were ready for a few days at the lake and decided it...

Easton | Micro Preemie to Five Years

Easton | Micro Preemie to Five Years

My fiancé Lane and I were very young when I found out I was pregnant with Easton – I was 19 and he was 20. Our expectations were to have a healthy full-term baby. That’s what any parent hopes for. We dreamed of being able to have Easton room in with us after delivery,...

Kayden : At His Own Pace

Kayden : At His Own Pace

We received Kayden’s diagnosis of Congenital Diaphragmatic Hernia at our 20 week anatomy scan when they discovered that his diaphragm had a large hole. This hole (hernia) allowed the majority of his abdominal organs to migrate into his chest and severely compromised...

Bowen Dean : Never Forget

Bowen Dean : Never Forget

May is Anencephaly Awareness MonthBy Tiffany SmithMommy to Bowen DeanAnencephalyAugust 2021In August 2021, my husband and I gave birth to a beautiful baby boy, Bowen Dean. Bowen had the most beautiful dark blue eyes, the longest salon curled eyelashes, an adorable...

Brian : Tiny Hero

Brian : Tiny Hero

April is CDH Awareness MonthI found out at 12 weeks that I was pregnant. We were shocked but excited. As an early Mother’s Day present I found out at 16 weeks that our sweet little caboose was another boy (youngest of three). After two healthy pregnancies I had...

Kamry : Super Girl

Kamry : Super Girl

March is Trisomy Awareness MonthMy husband and I knew we were ready to start a family, unfortunately we got the news he was going to be deployed July 2013. So we prayed about it and decided that we would let God decide if we would get pregnant before he left for...

Ashlyn : My Hero, My Strength, My Heart

Ashlyn : My Hero, My Strength, My Heart

March is Trisomy Awareness MonthI found out my sweet baby girl, Ashlyn, had Trisomy 18 (Edwards Syndrome) at my 20-week ultrasound. Doctors in Springfield – where we lived at the time – found I had only one artery on my umbilical cord and that she had a cleft lip. She...

Kaylyn : Angel Watching Over Us

Kaylyn : Angel Watching Over Us

February is Heart MonthWe found out we were pregnant with our second child on October 8, 2017; 11 days before Harper, our oldest daughter, turned one. We had decided to try again, but didn’t expect it to happen that quickly, what we like to call a “planned surprise.”...

Watson : Heart of a Warrior

Watson : Heart of a Warrior

February is Heart MonthBaby Ace, as we called him before finding out his gender and deciding a name, was a beautiful surprise! The moment I found out I was pregnant I did all the healthy things you can imagine. I was very conscious about what I put into my body and...

Raine : Keeping Pace

Raine : Keeping Pace

I never expected to be a heart mom. I never thought I’d have to pass my baby off to a surgeon; it’s the hardest thing to ever do as a mom. I never knew what the CHD world was before Raine was born. I just thought how any other parent thought: I’m having a baby I’m...

Za’morah | Trauma and Loss

Za’morah | Trauma and Loss

After being diagnosed with PCOS in 2009, my dreams of becoming a mom were crushed when I was told my body would fight off 9/10 pregnancies, making it almost impossible to carry to term. Fortunately, in October 2019, I had my first live birth... a little girl, and...

Owen | God’s Lasting Miracle

Owen | God’s Lasting Miracle

Following a previous miscarriage, we were experiencing a ‘typical’ pregnancy — until a sonogram changed everything. At our 20 week ultrasound, Owen’s head could not be viewed and we were told to reschedule for 4 weeks out. At the time, we had no suspicion that...

Hunter : My Giggly Boy

Hunter : My Giggly Boy

We decided that we needed one more child and started trying in 2016. We got pregnant at the beginning of 2017. We were so excited and so were our other children. We really wanted a boy and Russell said he wanted to name him Hunter. We knew from the beginning that was...

Kaysen James : My Little Butterfly

Kaysen James : My Little Butterfly

In May of 2021 we found out we were expecting our rainbow baby. The pregnancy was rough, but we were ecstatic. On January 6th 2021, our beautiful Kaysen was born via c-section after I had a lot of trouble with my blood pressure and they thought he may of had fluid...

Ella Grace : In God’s Hands

Ella Grace : In God’s Hands

Just 6 months after our second miscarriage, we found out that I was pregnant again. We were so relieved when I made it to the 12 week mark. Our then 5 year old, Owen, announced to the whole church that he was going to be big brother! He was so proud. I had bloodwork...

Enslee : Never Lose Hope

Enslee : Never Lose Hope

I got pregnant kind of unexpectedly. I was nervous -- it'd been 6 years since I had a baby -- but I was thrilled to share these moments with my best friend. He longed to be a dad so bad and my daughter always wanted a baby sister. I found out on April Fools Day of...

Naomi : You are my Sunshine

Naomi : You are my Sunshine

by Amy DohrMommy to NaomiDouble Dominant Achondroplasia Dwarfism2019I found out I was pregnant in August of 2018. We had been trying for almost a year, so we were ecstatic. But, my husband and I both have achondroplasia dwarfism, which created a sense of worry for our...

Milo : Nana’s Story

Milo : Nana’s Story

Milo Adler graced this earth on July 3rd at 31 weeks. He was in NICU for 5 weeks and got to come home for 5 days. Milo then experienced some issues that caused his mom some concerns. At the doctor's office, before he could ever be seen, he coded. Milo was stabilized...

Eden : Miracle Girl

Eden : Miracle Girl

March is Trisomy Awareness Month Eden was born at 37 weeks and 6 days in May of 2012 via c-section. We didn't know anything was wrong with her. She sounded strong but was in fact suffering. Eden was screaming because she couldn't breath and was trying to catch her...

Bentlee : From the Heart

Bentlee : From the Heart

To say our sweet, beautiful boy changed our lives is an understatement. When we decided to try for a child, we were so blessed to conceive quickly and without trouble. Though, throughout my pregnancy, I was sick. So sick. Though throughout my pregnancy I was sick. So...

Alex and Ryker

Alex and Ryker

Ryker was born at 25 weeks gestation and spent several months in the NICU. On Angels' Wings was there to capture his NICU graduation. His mom, Alex, a talented photographer, has since been a dedicated volunteer with the organization, giving precious photos to other...

Ellie : Connection Through Heartbreaking Realities

Ellie : Connection Through Heartbreaking Realities

In 2014, my husband Patrick and I welcomed our first child into the world. A beautiful little girl with pouty lips named Ellie. About a month before she was born, Patrick and I first heard the words that would shape our lives and the life of our daughter from that...

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