Dawson : Unique, Resilient, Brave, and Wonderful
Everything changed at the time of his birth. Only then did we begin to understand the magnitude of his sickness and the challenges that were ahead. After he was born, his doctors could finally give us more information about the severity of his condition. Reality set in once we had some concrete facts.
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February 19, 2025
What are Trisomy 13 and Trisomy 18?
Get answers to the question “What is Trisomy?” if your baby recently received that diagnosis in the womb.
January 29, 2025
All You Need to Know About Pediatric Congenital Heart Defects
A Congenital Heart Defect (CHD) is one of the most common birth defects among infants.
January 29, 2025
Woodson : Called ‘Heart Warrior’ for a Reason
By Lindsey BobbittMommy to WoodsonHypoplastic Left Heart Syndrome; Heart TransplantBorn September 2022 Our heart journey began in May 2022 at our anatomy scan. Woodson is our rainbow baby after losing our second daughter in August 2021 during the second trimester. I think I just assumed the pregnancy with Woodson would be fine because we had…
January 29, 2025
Anabel : Story of a Fighter
By Marisa BaeseMommy to AnabelHLHS (Hypoplastic Left Heart Syndrome), Down Syndrome T21August – October 2018We learned about Anabel’s severe heart defect and chromosome abnormality during the 20-week ultrasound. We were referred to specialists in St. Louis and saw them monthly until learning she would need to be born early at 34 weeks 5 days on…
January 28, 2025
Fable : Waiting for a New Heart
By Mia WoodsMommy to FableBackwards Heart; Single Heart VentricleBorn December 2023 I was 20 weeks pregnant when we found out about Fable’s diagnosis – a backwards heart and single heart ventricle. At 36 weeks, I went in for a checkup and my baby’s heart rate was 280. I was quickly rushed to OB emergency where…
January 28, 2025
Sebastian : 8-Hour Open Heart Surgery
By Britney BoyerMommy to SebastianHypoplastic Left Heart SyndromeBorn May 2023 When I was in my third trimester of pregnancy, I was on my way to an OB appointment, hit a patch of black ice, spinning four times and hitting two trees. I crawled out of my car to wave down another vehicle and call an…
January 28, 2025
Da’Laya : Take Nothing for Granted
By Christina BryantMommy to Da’LayaInterrupted Aortic Arch Type B, large VSDNovember 2019 – February 2020 I got pregnant when I was 17 and did everything to ensure I had a healthy baby and pregnancy. My son was born with a hole in his heart and unbalanced chromosomes. They flew him to St. Louis 12 hours…
December 28, 2024
Amelia : Our Miracle Baby
By Nicole LattaMommy to AmeliaCongenital Heart Defect – Transposition of Great ArteriesBorn in 2024 When my husband and I found out we were pregnant, we were over the moon excited, but also slightly nervous to be parents for the first time! Who will our little one look like? What will their personality be like? How…
December 28, 2024
Raiden : Cherish Every Moment
By Desiree JoynerMommy to RaidenHypoplastic Left Heart Syndrome and 16.1 chromosome deletionJune 24 – August 1, 2024 From the start I always wanted a boy. When I found out I was pregnant in October of 2023, I couldn’t believe it. I was so happy to find out his due date was in July because my…
December 28, 2024
Aidan & Thomas : Hardship to Thriving
By Lisa SmithMommy to Aidan & ThomasMonochorionic Twin Pregnancy, sIUGR, born premature2024 At just 17 weeks pregnant with twins, we learned we had a monochorionic twin pregnancy (sharing one placenta) that resulted in selective intrauterine growth restriction (sIUGR). Because of this, there was a chance that the smaller baby (baby A/Aidan) would not continue to…