Recipient Stories

Today, Jamison is still fighting. Leigh syndrome is a lifelong diagnosis, but he continues to beat the odds and prove doctors wrong. Having his trach removed in May 2025 was a huge milestone. He still uses his G-button to help with nutrition because gaining weight remains difficult, but overall, his diagnosis has become such a…

Her BPD diagnosis felt incredibly overwhelming. Every day we watched her struggle, even with the level of support she was receiving. Her doctors explained that she would continue to struggle until her lungs grew and strengthened, and that simply took time. We were fearful that she would tire out from working so hard to breathe…

We had been told that we might never hear a cry or see any movement from our son. But Jack continued to defy the odds. Before they placed his breathing tube, he cried. He came into this world ready to fight. We knew the chances of survival were slim, but all we were asking for…

By Haley & Brice WiggsParents to Izzy Lynn CatherineAnencephalyAugust 23, 2025 Our journey to get pregnant was not easy. We are only able to get pregnant through IVF, and this pregnancy was our second IVF baby. We found out about Izzy Lynn’s diagnosis of anencephaly at our anatomy scan. Because we were an IVF pregnancy,…

Our baby, Levi-Ronald, passed away 45 minutes after he was born. He didn’t have a long time here. We were connected with On Angels’ Wings through a hospital social worker after Levi’s diagnosis, and they have been a lot of help. I really appreciate the photos they have done – maternity pictures and pictures of…

Jensen was placed on my chest, and he cried. A sound we weren’t sure we would ever hear. Jensen’s six days were filled with both beauty and heartbreak. He brought Heaven into our home. It was tangible and real. Family who came to meet him could feel it and commented on it often.

Audrey Steward and Crystal Carter are best friends. Knowing that Crystal was unable to have more children but still longed to grow her family, Audrey had offered to carry a child for her. But at the 20-week ultrasound, all of the plans for a future changed; Ryder had anencephaly and would not survive.

Doctors explained that CDK19 is a neurodevelopmental gene mutation, meaning it affects the brain and nervous system. They told me that eventually it would likely lead to grand mal seizures. They painted a picture of a future full of limitations—that she might never walk, never run, and never have the independence other children enjoy. But…

Throughout each step of his journey so far and all he has already overcome, Leon has always been infectiously happy. He hasn’t always been strong enough to laugh, but from the moment he learned he could do it, his laughter has been filling rooms and hearts.

As soon as Theo and his brother came to live with us, we began working closely with a pediatric GI team, determined to find answers for our boy. Within a few months, we learned that Theo had Hirschsprung’s disease, a congenital birth defect that should have been diagnosed within the first six weeks of life.…