anencephaly

It means a lot that OAW is still here for my family. Knowing that we can lean on OAW years later and that they still understand is meaningful. The amount of time they put into this program shows how much they care for their recipient families and our mental health. Capturing memories is so important,…

By Haley & Brice WiggsParents to Izzy Lynn CatherineAnencephalyAugust 23, 2025 Our journey to get pregnant was not easy. We are only able to get pregnant through IVF, and this pregnancy was our second IVF baby. We found out about Izzy Lynn’s diagnosis of anencephaly at our anatomy scan. Because we were an IVF pregnancy,…

Our baby, Levi-Ronald, passed away 45 minutes after he was born. He didn’t have a long time here. We were connected with On Angels’ Wings through a hospital social worker after Levi’s diagnosis, and they have been a lot of help. I really appreciate the photos they have done – maternity pictures and pictures of…

Jensen was placed on my chest, and he cried. A sound we weren’t sure we would ever hear. Jensen’s six days were filled with both beauty and heartbreak. He brought Heaven into our home. It was tangible and real. Family who came to meet him could feel it and commented on it often.

Audrey Steward and Crystal Carter are best friends. Knowing that Crystal was unable to have more children but still longed to grow her family, Audrey had offered to carry a child for her. But at the 20-week ultrasound, all of the plans for a future changed; Ryder had anencephaly and would not survive.

Thirteen minutes after birth, Renesemee’s heart started beating. She definitely was a fighter. Her daddy holding her made her start breathing.

Sophia’s diagnosis reminded me how short life is. I need to cherish every moment I have with my two other kids. We love to talk about Sophia and how she is in a far better place now. We miss her dearly. My kids draw pictures of her all the time. Life is truly such an…

Learn more about anencephaly and what the diagnosis means for your unborn child.