Recipient Stories

By Scott McDonaldDaddy to AmadaPentalogy of CantrellBorn November 2022 We always wanted to have children, just not sure of the timing. We tried for some time before it happened, so when we got pregnant, we were so happy. We celebrated so much. Right before we got pregnant, we were seeing a specialist, and we just…

By Penny RodenhouseMommy to Joseph “Joey”PTPRT Gene Mutation, Moebius Syndrome, Tracheomalacia, Congenital Myopathy, Epilepsy, Hypotonia, Chronic respiratory failureBorn May 2022 My husband and I tried to have a baby for 6 years and were unsuccessful. Fertility testing showed we’d need to do IVF to even conceive a child. We were heartbroken but knew that God…

By Abby FaumuinaMommy to LedgerLimb Body Wall ComplexApril 12, 2023 After trying to get pregnant for over 3 years, we finally gave up and decided we were probably infertile. To our surprise, on August 27, 2023 we found out I was pregnant. It was the best shock of our lives. We were absolutely ecstatic! It…

By Angela FrankMommy to BeckhamOctober 26 – November 12, 2022Brain AVM, Heart Failure Beckham’s pregnancy was a really big surprise! A surprise we didn’t know we wanted so bad until it happened. Nick and I had been together for 5 years and were raising Brooks, my child from a previous relationship. After the initial shock…

By Lisa EgglestonMommy to EzraMay 24 – May 25, 2019Acrania We decided we wanted to start our family fairly young to be younger parents. After a couple of months, we were soon pregnant with our first child in September 2018. We were excited and started making plans for our new little family. We quickly told…

By Darby HarveyMommy to SamuelBorn March 2023Trisomy 13 My husband and I struggled with infertility. We were in the process of seeing multiple specialists for infertility treatment when we found out we were pregnant. At our 20-week anatomy scan they found our little boy had a significant kidney problem. We were referred to St. Louis…

By Nicole WeberMommy to IlahBorn August 2023Pulmonary Atresia – Congenital Heart Defect We went in for our 20-week anatomy scan for our second child and found we were having a girl. However, the ultrasound tech started to seem a little worried. Once the scan was done, she told us to wait and she was going…

I wrote this on my Facebook profile two years ago and it’s still one of the best things my husband and I have ever gone through together. I highly, highly recommend the Grief Recovery Method. Friends, if you have a loss of any kind that you need to walk through and process, please reach out…

By Samantha LaBargeMommy to RileyInfant Acute Lymphocytic Leukemia Everything started when Riley was about 4 or 5 months old – she had a bump on her head and what seemed like a cold with a fever that wouldn’t break with Tylenol. We took her to the hospital because she was becoming lethargic. When they took…

By Tonya MorrisMommy to LanaNeurofibromatosis type 1 (NF1) Lana’s journey started when she was born (August 2017). She scream-cried every day and almost all day long. She projectile vomited after every feeding and wasn’t keeping any weight on. After many doctor visits and admissions in the hospitals, I was finally able to get answers to…