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May 1, 2024

Abigail : Everything Will Be Alright

Marcy JuddMommy to AbigailAnencephalyOctober 2022 We started trying to get pregnant with our second child in January 2021. We knew we’d probably need medical help as it had taken two rounds of fertility treatments to get pregnant the first time, but we naively hoped we could get pregnant on our own this time. We tried…

April 30, 2024

Caroline : Life in Slow Motion

By Mackenzie SlackMommy to CarolineAnencephalyFebruary 2023 Our journey began with the happiest August ever. The three of us (my husband, son, and I) were overjoyed to find out we were expecting. Our son was 3 when we found out we were expecting, and we were already stressed that there was such a large age gap…

March 29, 2024

Samuel : Such a Joy

I found out about Samuel’s pregnancy after I had experienced three losses before him. I had an older son and we had been trying to have another baby and had a miscarriage, ectopic pregnancy, then another miscarriage before finding out about Samuel. It was actually during my ectopic pregnancy that I decided my next son…

March 29, 2024

Henry : Always Adapting

By Christine HunterMommy to HenryBorn August 2018Congenital Diaphragmatic Hernia5q14.3-5q15 Deletion, Bosch Boonstra Schaaf Optic Atrophy Syndrome, MEF2C Haploinsufficiency Syndrome, Cortical Visual Impairment, Infantile spasms (West Syndrome) My pregnancy with our first-born son, Henry David, was easy with zero concerns. We had an ultrasound at 10 weeks and 20 weeks which both showed no concerns. His growth was on track…

March 29, 2024

Benjamin : 311 Days

By Jackie HayMommy to BenjaminBorn April 2022Congenital Heart Defect – Hypoplastic Left Heart SyndromeTransplant Survivor In September 2021, we were surprised to learn that our family of three would soon be turning into a family of give! At our anatomy ultrasound in December 2021, we were told that Baby B had a “blip” on his heart.…

March 6, 2024

Hazel : Blindsided by a Second Diagnosis

By Rebecca NorrisMommy to HazelBorn February 2016Pontocerebellar Hypoplasia Hazel was born prematurely. My water broke at 24 weeks and they kept her in until 27 weeks and 4 days. This is when our journey with On Angels’ Wings began – capturing a little baby in NICU born at 1-pound 13-ounces and 13-inches long. I couldn’t…

March 1, 2024

Rhylyn : Unbreakable Bond

By Braedn ArnallDaddy to RhylynBorn February 2019Hypoxic ischemic encephalopathy (HIE) Rhylyn had a traumatic birth. Thankfully, she is a very strong girl and is doing her best to overcome any obstacles. As hard as it may be, her diagnosis has impacted us both positively. She doesn’t understand what’s going on around her, so that makes…

March 1, 2024

Louie : Love Keeps Him Here

By Maria BottinoMommy to LouieBorn August 2021Hypoxic Ischemic Encephalopathy (HIE) I’ve been told since I was 16 years old that I would never get pregnant due to a health concern of my own – endometriosis. In January 2021 that quickly changed with a very positive pregnancy test. I was ecstatic, but also a little scared.…

February 29, 2024

Izzy : True Vision of a Warrior

By Carrie DyalMommy to Izadora “Izzy”Born August 2019Intractable epilepsy without status epilepticus and global delays My husband and I had had two miscarriages before Izzy was born; a twin pregnancy lost at 8.5 weeks, and a blighted ovum lost at 9 weeks. We were devastated. Met with Dr Poppy an infertility specialist and at that time…

February 29, 2024

Tate : It is Well With My Soul

By Heather CrowleyMommy to TateBorn June 2019Ohtahara Syndrome Recently married with a three-year-old stepson, my husband and I decided to try to get pregnant fairly quickly so that the kids could be close in age. We were pregnant within a couple months of trying and it all was working out as planned. I had a…