Emily : Grief Recovery Helped Lift the Guilt
Providing grief recovery is the very sweet cherry-on-top of the services OAW offers. OAW touches a very niche group of families who are experiencing things that sometimes make us feel so isolated from our peers and the rest of the world. OAW has been part of my life since 2020 and has offered ongoing support…
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February 19, 2025
Sofia : Adapt the World for Her
On Angels’ Wings helps us to stay positive. They are great at making you feel comfortable and help families that feel scared about taking their complex kids into situations that most don’t understand. OAW accommodates as we need, and we love that.
February 19, 2025
Amaya : Miracle 3 Weeks Together
We held her expecting her to pass away at any moment, but she didn’t and we were able to take her home. Amaya lived at home for nearly 3 weeks before she passed, and we’re so grateful for that extra, unexpected time with her. Now we are trying to heal and honor her and her…
February 19, 2025
What is Hydrocephalus?
Learn about hydrocephalus in babies and children and the symptoms of this neurological condition known as “water on the brain.”
February 19, 2025
What are Trisomy 13 and Trisomy 18?
Get answers to the question “What is Trisomy?” if your baby recently received that diagnosis in the womb.
January 29, 2025
All You Need to Know About Pediatric Congenital Heart Defects
A Congenital Heart Defect (CHD) is one of the most common birth defects among infants.
January 29, 2025
Woodson : Called ‘Heart Warrior’ for a Reason
By Lindsey BobbittMommy to WoodsonHypoplastic Left Heart Syndrome; Heart TransplantBorn September 2022 Our heart journey began in May 2022 at our anatomy scan. Woodson is our rainbow baby after losing our second daughter in August 2021 during the second trimester. I think I just assumed the pregnancy with Woodson would be fine because we had…
January 29, 2025
Anabel : Story of a Fighter
By Marisa BaeseMommy to AnabelHLHS (Hypoplastic Left Heart Syndrome), Down Syndrome T21August – October 2018We learned about Anabel’s severe heart defect and chromosome abnormality during the 20-week ultrasound. We were referred to specialists in St. Louis and saw them monthly until learning she would need to be born early at 34 weeks 5 days on…
January 28, 2025
Fable : Waiting for a New Heart
By Mia WoodsMommy to FableBackwards Heart; Single Heart VentricleBorn December 2023 I was 20 weeks pregnant when we found out about Fable’s diagnosis – a backwards heart and single heart ventricle. At 36 weeks, I went in for a checkup and my baby’s heart rate was 280. I was quickly rushed to OB emergency where…
January 28, 2025
Sebastian : 8-Hour Open Heart Surgery
By Britney BoyerMommy to SebastianHypoplastic Left Heart SyndromeBorn May 2023 When I was in my third trimester of pregnancy, I was on my way to an OB appointment, hit a patch of black ice, spinning four times and hitting two trees. I crawled out of my car to wave down another vehicle and call an…
January 28, 2025
Da’Laya : Take Nothing for Granted
By Christina BryantMommy to Da’LayaInterrupted Aortic Arch Type B, large VSDNovember 2019 – February 2020 I got pregnant when I was 17 and did everything to ensure I had a healthy baby and pregnancy. My son was born with a hole in his heart and unbalanced chromosomes. They flew him to St. Louis 12 hours…