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Learn the answer to “what is a congenital diaphragmatic hernia?” and how this condition impacts health from birth.

We had 10 weeks from the diagnosis to love Cecelia as much as we could. We sought an induction the day before her due date, as I couldn’t feel her kicking and moving as much as before. It was really scary. She stayed with us though labor, her heartbeat on the monitor. We had a…

I hope that we continue to move on and heal from losing our precious Elizabeth. We want to be a light to others that have helped us during our most difficult times, and we hope to help others that will face hard times in the future. We want to keep her memory alive and continue…

Testing after she was born revealed that Aurora had a gap between her valve and heart, and that she had Trisomy 18.

On Angels’ Wings helps us to stay positive. They are great at making you feel comfortable and help families that feel scared about taking their complex kids into situations that most don’t understand. OAW accommodates as we need, and we love that.

We held her expecting her to pass away at any moment, but she didn’t and we were able to take her home. Amaya lived at home for nearly 3 weeks before she passed, and we’re so grateful for that extra, unexpected time with her. Now we are trying to heal and honor her and her…

By Lindsey BobbittMommy to WoodsonHypoplastic Left Heart Syndrome; Heart TransplantBorn September 2022 Our heart journey began in May 2022 at our anatomy scan. Woodson is our rainbow baby after losing our second daughter in August 2021 during the second trimester. I think I just assumed the pregnancy with Woodson would be fine because we had…

By Marisa BaeseMommy to AnabelHLHS (Hypoplastic Left Heart Syndrome), Down Syndrome T21August – October 2018We learned about Anabel’s severe heart defect and chromosome abnormality during the 20-week ultrasound. We were referred to specialists in St. Louis and saw them monthly until learning she would need to be born early at 34 weeks 5 days on…

By Mia WoodsMommy to FableBackwards Heart; Single Heart VentricleBorn December 2023 I was 20 weeks pregnant when we found out about Fable’s diagnosis – a backwards heart and single heart ventricle. At 36 weeks, I went in for a checkup and my baby’s heart rate was 280. I was quickly rushed to OB emergency where…

By Nicole LattaMommy to AmeliaCongenital Heart Defect – Transposition of Great ArteriesBorn in 2024 When my husband and I found out we were pregnant, we were over the moon excited, but also slightly nervous to be parents for the first time! Who will our little one look like? What will their personality be like? How…