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There are hundreds of people who followed Ellie’s journey from afar and found inspiration in her story. I had the honor of witnessing her life up close for nearly a decade. Her impact runs deeper than inspiration—she and her family helped shape how we support every family we serve.

Learn more about what exactly BPD means for your baby and the treatment routes your baby’s physicians may recommend over the next several weeks. 

We got Josie when she was 9 months old, placed with us through medical foster care. We knew she had Marshall-Smith Syndrome, but we had no idea the journey the Lord was about to take us on.

Each year, On Angels’ Wings presents the VIP (Very Important Photographer) Award to a select group of volunteer photographers who exemplify our mission and values through extraordinary dedication.

I want to talk about something else equally entangled with our mental health: grief. And more specifically, how we respond — or often, how we don’t quite know how to respond — when someone we care about is deep in the throes of it.

Thirteen minutes after birth, Renesemee’s heart started beating. She definitely was a fighter. Her daddy holding her made her start breathing.

Sophia’s diagnosis reminded me how short life is. I need to cherish every moment I have with my two other kids. We love to talk about Sophia and how she is in a far better place now. We miss her dearly. My kids draw pictures of her all the time. Life is truly such an…

We hope that Evie lives a normal, full life, stays strong, and that—as her family—we never take a single thing for granted. We don’t sweat the small stuff anymore. Life is precious.

Everything changed at the time of his birth. Only then did we begin to understand the magnitude of his sickness and the challenges that were ahead. After he was born, his doctors could finally give us more information about the severity of his condition. Reality set in once we had some concrete facts.

I hope for happiness, health, love, and wellbeing. I hope life is fair to him. That he surrounds himself with people who see his worth and respect him. Friends who cherish him. I hope he dreams of all the possibilities and ways he can contribute to changing the world.