Recipient Stories

After everything happened, samples from Amari’s umbilical cord were sent for testing. It took just over six months to receive the results. That’s when we finally received a diagnosis: Walker-Warburg Syndrome, an extremely rare and severe form of muscular dystrophy that affects the brain and eyes. Only about 1 in 100,000 babies are born alive…

I love having memories from OAW that show how far my daughter and I have come. Having a support system outside of doctors and nurses—one filled with families who understand the emotional juggling that comes with raising a child with special needs—has been invaluable. I love meeting other moms and families at gatherings. Seeing a…

It’s hard to imagine a life without the perspective and hope that stillbirth has brought me. And it’s even harder to imagine a life where I never got to love my son — even if it was only for a moment.

There’s always a feeling that something — or someone — is missing. Sometimes it hits like a wave. Other times it’s more subtle, like that nagging sense of “I’m forgetting something.” But I’m not. I’m remembering someone: my son.

Three days later, Blakely passed away in my arms. As I held him, the doctors came in to share the news that Dericka had tested positive for Trisomy 18. Until that moment, we had hoped the Trisomy 18 diagnosis belonged to Blakely. But in another rare twist, it turned out each of our twins had…

OAW has been instrumental in keeping Genesis Makenna’s memory alive, giving me a place to heal and a way to give back to families like mine. Being directly involved in this work — the same work that meant so much to me during my darkest moments — has brought healing and meaning I never expected.

The photos of Caleb are the only ones we have, aside from the few my husband took after birth. I look at them often. They remind me he was real, even if only for part of a day. I didn’t know how much I’d treasure them until after. I’m so thankful for the nursing staff…

Looking back, knowing now what they offer, I wish I had connected with On Angels’ Wings back in 2019 when we experienced our first loss. Because I knew loss was possible, with Jamysen I had simply wanted a family photo in case something unexpected happened… but we were blessed with more than I could have…

Theophilus (Theo) was born at just 25 weeks—a true micro preemie. I just want to give him the best life we possibly can. I never want [a] diagnosis to define him. He’s already done so much more than the doctors ever predicted he would.

His diagnosis and death deeply impacted our lives. We were thrust into a world we didn’t recognize, trying to navigate the deep grief of losing a child while still being parents and attempting to move forward. The aftermath of child loss is a winding road and can be treacherous. We have to learn how to…