Recipient Stories

By Katelyn LeeMommy to Harper MaeCHD – Truncus ArteriosusAugust 21 – October 17, 2022 (Scroll below to see the couple’s video story, as well as their update with their miracle rainbow baby born in 2024!)  My husband and I found out we were pregnant with our son in January of 2021. We spent January to May…

By Maggie ButtramMommy to ColeCongenital Heart Defect I remember every detail of what we thought would be our 19-week anatomy scan for our second child; it became a moment that is burned in my mind forever. My husband had to work, so I went alone, with my mom and oldest son in the waiting room.…

By Breanna ScottMommy to KendrickSpina Bifida Our journey with Spina Bifida began at my anatomy scan while pregnant with our first child, Kendrick, in 2017. My OB noticed some abnormalities on my ultrasound and sent me to a local maternal fetal medicine doctor. While there, I got another ultrasound and an amniocentesis. Both confirmed that our baby…

By Micah ClarkDaddy to Zander Born still on August 12, 2017 My wife, Raelynn and I were super excited to welcome our son in the fall of 2017, and life was good until that summer. August 11th, a typical day, we went in for our baby’s check-up. We got checked in and taken back to the…

By Taleah JohnstonMommy to Martha Born still on May 24, 2022Anencephaly My husband and I take a fishing trip for our anniversary each year. When our anniversary came in 2021, we were ready for a few days at the lake and decided it would be a good time to decide if our family was ready to…

By Jessica NowlinMommy to EastonMicro Preemie born at 23 weeks gestation My fiancé Lane and I were very young when I found out I was pregnant with Easton – I was 19 and he was 20. Our expectations were to have a healthy full-term baby. That’s what any parent hopes for. We dreamed of being…

By Kennon & Diana EllisonParents to KaydenCongenital Diaphragmatic Hernia, Congenital Heart Defect, Heterotaxy We received Kayden’s diagnosis of Congenital Diaphragmatic Hernia at our 20 week anatomy scan when they discovered that his diaphragm had a large hole. This hole (hernia) allowed the majority of his abdominal organs to migrate into his chest and severely compromised his…

By Tiffany SmithMommy to Bowen DeanAnencephalyAugust 2021 In August 2021, my husband and I gave birth to a beautiful baby boy, Bowen Dean. Bowen had the most beautiful dark blue eyes, the longest salon curled eyelashes, an adorable button nose, some of the chubbiest cheeks, and legs for days. Bowen was only on this Earth…

By Carah HicksMommy to Brian EarlCongenital Diaphragmatic HerniaOctober 17-21, 2018 I found out at 12 weeks that I was pregnant. We were shocked but excited. As an early Mother’s Day present I found out at 16 weeks that our sweet little caboose was another boy (youngest of three). After two healthy pregnancies I had anticipated…

By Krista ThompsonMother to Kamry Ann “Super Girl”Trisomy 13 My husband and I knew we were ready to start a family, unfortunately we got the news he was going to be deployed July 2013. So we prayed about it and decided that we would let God decide if we would get pregnant before he left…