Recipient Stories

November 5, 2024

Walker: Born Weighing Less than Two Pounds

By Mya BerryMommy to WalkerBorn premature at 28 weeks, weighing 1 lb 7 ozJune 2023 Walker was our rainbow baby, a little miracle after months of trying and the heartbreak of a miscarriage. We were beyond excited and hopeful, feeling like everything was falling into place. My pregnancy had been smooth, and every doctor’s visit…

November 5, 2024

Micah : Arrived Weighing 1 Pound, 9 Ounces

By Cassandra SheltonMommy to MicahBorn premature at 24 weeks in May 2023 On the morning of May 5th, everything seemed ordinary. I was nearly 24 weeks pregnant, feeling grateful and hopeful, as any expectant mother would. But that night, I felt severe cramping and, realizing something was wrong, I went to the ER. Part of…

November 5, 2024

Fred: 145 Days in the NICU

By Savannah MandellMommy to FredBorn premature at 25 weeks in January 2023 When Matthew and I married on January 19th, we were full of hope and excitement. We had an anatomy scan scheduled for our baby boy just hours after our wedding. We were told he was smaller than expected for his gestational age, but…

October 2, 2024

Moroni : The Most Beautiful Smile

By Ceianna KatoMommy to MoroniSpina Bifida and HydrocephalusBorn January 2023 We had ten children when we got pregnant. We had recently moved and I wasn’t too eager to find a doctor, so I procrastinated. When we finally settled on a place, I was around 28 weeks. The first ultrasound showed some brain and spinal problems…

October 2, 2024

John : Sweet & Laid Back

By Sarah IngeMommy to JohnSpina Bifida (Myelomeningocele), Hydrocephalus & Chiari 2 MalformationBorn 2017 When I found out I was pregnant, I wanted what everyone wants: a healthy baby that I’m going to run after, potty train, all those milestones. It never crossed my mind that something could be wrong. When I found out I was…

October 1, 2024

August: Resilience in a Tiny Package

After being released from the NICU in 2023, Augie’s parents shared his story. As of August 2024, he’s a year removed from his NICU stay and doing wonderfully. Be sure to see his latest photos below!

October 1, 2024

Holden : We’re Not Alone

Samantha Owsley, mommy to Holden, shares their journey with his Spina Bifida diagnosis and working with On Angels’ Wings.

August 29, 2024

Jeremiah : Learning How to Say Goodbye

By Amber WeeksMommy to Jeremiah EliMitochondrial DiseaseMarch 13 – April 21, 2022 My 3rd child, Emberlee, was born December 26, 2017. A month later, she went to sleep after a bottle at 2:30 a.m. on January 21, 2018 and never woke up. After that, we had our daughter Isabella with little complication. For our 5th…

August 29, 2024

Malcolm : Vessel for Love

By Emily RowdenMommy to Malcolm “Mac”Mitochondrial DiseaseAug 29, 2021 – March 2, 2022 We lost our daughter, Alice Ada, to stillbirth at 28 weeks in September of 2020. Malcolm (Mac) was our planned rainbow baby. Many families will understand the expectations of a rainbow baby. Their life and potential bring so much joy, comfort, and…

July 31, 2024

Lincoln : Just Breathe

By Brooke RiddlespergerMommy to LincolnChronic Lung Disease / Bronchopulmonary DysplasiaBorn in November 2019 I had a super rough pregnancy, something was always wrong. I was in and out of triage. This night was different because I KNEW something was really bad, however I thought it might just be Braxton Hicks Contractions. Turns out I was…