Recipient Stories

By Ceianna KatoMommy to MoroniSpina Bifida and HydrocephalusBorn January 2023 We had ten children when we got pregnant. We had recently moved and I wasn’t too eager to find a doctor, so I procrastinated. When we finally settled on a place, I was around 28 weeks. The first ultrasound showed some brain and spinal problems…

By Sarah IngeMommy to JohnSpina Bifida (Myelomeningocele), Hydrocephalus & Chiari 2 MalformationBorn 2017 When I found out I was pregnant, I wanted what everyone wants: a healthy baby that I’m going to run after, potty train, all those milestones. It never crossed my mind that something could be wrong. When I found out I was…

After being released from the NICU in 2023, Augie’s parents shared his story. As of August 2024, he’s a year removed from his NICU stay and doing wonderfully. Be sure to see his latest photos below!

Samantha Owsley, mommy to Holden, shares their journey with his Spina Bifida diagnosis and working with On Angels’ Wings.

By Amber WeeksMommy to Jeremiah EliMitochondrial DiseaseMarch 13 – April 21, 2022 My 3rd child, Emberlee, was born December 26, 2017. A month later, she went to sleep after a bottle at 2:30 a.m. on January 21, 2018 and never woke up. After that, we had our daughter Isabella with little complication. For our 5th…

By Emily RowdenMommy to Malcolm “Mac”Mitochondrial DiseaseAug 29, 2021 – March 2, 2022 We lost our daughter, Alice Ada, to stillbirth at 28 weeks in September of 2020. Malcolm (Mac) was our planned rainbow baby. Many families will understand the expectations of a rainbow baby. Their life and potential bring so much joy, comfort, and…

By Brooke RiddlespergerMommy to LincolnChronic Lung Disease / Bronchopulmonary DysplasiaBorn in November 2019 I had a super rough pregnancy, something was always wrong. I was in and out of triage. This night was different because I KNEW something was really bad, however I thought it might just be Braxton Hicks Contractions. Turns out I was…

By Taylor RobersonMommy to JacobTrisomy 10q2022-2023 When we first found out we were pregnant we were so excited. Then we went in for our anatomy scan and our world changed. Baby boy was measuring small and his heart did not look normal. We got an amniocentesis that confirmed his diagnosis of Trisomy 10q, which felt surreal.…

By Elisha HillMommy to KamiyahTurner Syndrome, Congenital Heart Defect2023 Kamiyah was my 6th pregnancy and, because of my age, we decided to do the NIPT testing in the first trimester of my pregnancy. We wanted to do a gender reveal, but unfortunately that wasn’t going to be possible, because my doctor called to tell me…

By: Stephanie WeidknechtMommy to WyattLaryngomalacia TracheamalaciaBorn in February 2022 Wyatt was born a healthy full-term baby, or so we thought. Immediately after birth, he sounded like a dog toy, and I thought “that’s a cute quirk.” Occasionally I would worry that something was wrong with him, but the lack of concern from others often made…