Recipient Stories

By Mollie JonesMommy to AndreCongenital Heart Defect – Hypoplastic Left Heart SyndromeApril 11, 2022 – January 20, 2023 Our journey began in January 2022, at about 6 months pregnant with our first child. We were told that our unborn son’s heart was no longer developing, and we were sent to specialists two hours away from…

By Kyle CrowDaddy to EmersonCongenital Heart Defect / Ventricular Septal Defect (VSD)Born July 2022 Toward the end of my wife’s pregnancy, we went in for an ECV procedure. Our unborn daughter, Emerson, was breech and this procedure was an attempt to flip her since her due date was only three weeks away. During the procedure…

By Mya BerryMommy to WalkerBorn premature at 28 weeks, weighing 1 lb 7 ozJune 2023 Walker was our rainbow baby, a little miracle after months of trying and the heartbreak of a miscarriage. We were beyond excited and hopeful, feeling like everything was falling into place. My pregnancy had been smooth, and every doctor’s visit…

By Cassandra SheltonMommy to MicahBorn premature at 24 weeks in May 2023 On the morning of May 5th, everything seemed ordinary. I was nearly 24 weeks pregnant, feeling grateful and hopeful, as any expectant mother would. But that night, I felt severe cramping and, realizing something was wrong, I went to the ER. Part of…

By Savannah MandellMommy to FredBorn premature at 25 weeks in January 2023 When Matthew and I married on January 19th, we were full of hope and excitement. We had an anatomy scan scheduled for our baby boy just hours after our wedding. We were told he was smaller than expected for his gestational age, but…

By Ceianna KatoMommy to MoroniSpina Bifida and HydrocephalusBorn January 2023 We had ten children when we got pregnant. We had recently moved and I wasn’t too eager to find a doctor, so I procrastinated. When we finally settled on a place, I was around 28 weeks. The first ultrasound showed some brain and spinal problems…

By Sarah IngeMommy to JohnSpina Bifida (Myelomeningocele), Hydrocephalus & Chiari 2 MalformationBorn 2017 When I found out I was pregnant, I wanted what everyone wants: a healthy baby that I’m going to run after, potty train, all those milestones. It never crossed my mind that something could be wrong. When I found out I was…

After being released from the NICU in 2023, Augie’s parents shared his story. As of August 2024, he’s a year removed from his NICU stay and doing wonderfully. Be sure to see his latest photos below!

Samantha Owsley, mommy to Holden, shares their journey with his Spina Bifida diagnosis and working with On Angels’ Wings.

By Amber WeeksMommy to Jeremiah EliMitochondrial DiseaseMarch 13 – April 21, 2022 My 3rd child, Emberlee, was born December 26, 2017. A month later, she went to sleep after a bottle at 2:30 a.m. on January 21, 2018 and never woke up. After that, we had our daughter Isabella with little complication. For our 5th…