What Not to Say to Someone Grieving — and Why It Matters
I want to talk about something else equally entangled with our mental health: grief. And more specifically, how we respond — or often, how we don’t quite know how to respond — when someone we care about is deep in the throes of it.
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March 25, 2025
What is a Congenital Diaphragmatic Hernia?
Learn the answer to “what is a congenital diaphragmatic hernia?” and how this condition impacts health from birth.

February 20, 2025
Cecelia : Finding Joy Through Heartbreaking Loss
We had 10 weeks from the diagnosis to love Cecelia as much as we could. We sought an induction the day before her due date, as I couldn’t feel her kicking and moving as much as before. It was really scary. She stayed with us though labor, her heartbeat on the monitor. We had a…

February 20, 2025
Elizabeth : Living On to Make Her Proud
I hope that we continue to move on and heal from losing our precious Elizabeth. We want to be a light to others that have helped us during our most difficult times, and we hope to help others that will face hard times in the future. We want to keep her memory alive and continue…

February 20, 2025
Aurora : Trisomy & CHD Diagnoses Missed in Utero
Testing after she was born revealed that Aurora had a gap between her valve and heart, and that she had Trisomy 18.

February 19, 2025
Sofia : Adapt the World for Her
On Angels’ Wings helps us to stay positive. They are great at making you feel comfortable and help families that feel scared about taking their complex kids into situations that most don’t understand. OAW accommodates as we need, and we love that.

February 19, 2025
Amaya : Miracle 3 Weeks Together
We held her expecting her to pass away at any moment, but she didn’t and we were able to take her home. Amaya lived at home for nearly 3 weeks before she passed, and we’re so grateful for that extra, unexpected time with her. Now we are trying to heal and honor her and her…

February 19, 2025
What is Hydrocephalus?
Learn about hydrocephalus in babies and children and the symptoms of this neurological condition known as “water on the brain.”

February 19, 2025
What are Trisomy 13 and Trisomy 18?
Get answers to the question “What is Trisomy?” if your baby recently received that diagnosis in the womb.

January 29, 2025
All You Need to Know About Pediatric Congenital Heart Defects
A Congenital Heart Defect (CHD) is one of the most common birth defects among infants.

January 29, 2025
Woodson : Called ‘Heart Warrior’ for a Reason
By Lindsey BobbittMommy to WoodsonHypoplastic Left Heart Syndrome; Heart TransplantBorn September 2022 Our heart journey began in May 2022 at our anatomy scan. Woodson is our rainbow baby after losing our second daughter in August 2021 during the second trimester. I think I just assumed the pregnancy with Woodson would be fine because we had…